Genetic counseling, 2030: An on-demand service tailored to the needs of a price conscious, genetically literate, and busy world.

Sub panel discussing data privacy. Full panel can be found in the supplemental materials section.

Rashkin MD1, Bowes J1, Dunaway K1, Dhaliwal J1, Loomis E1, Riffle S1, Washington NL1, Ziegler C1, Lu J1, Levin E1.

1 Helix Opco, LLC, San Carlos, California.

Abstract

The practice of genetic counseling is going to be impacted by the public's expectation that goods, services, information, and experiences happen on demand, wherever and whenever people want them. Building from trends that are currently taking shape, this article looks just over a decade into the future-to 2030-to provide a description of how the field of genetics and genetic counseling will be changed, as well as advice for genetic counselors for how to prepare. We build from the prediction that a large portion of the general public will have access to their digitized whole genome sequence anytime, any place, on any device. We focus on five topics downstream of this prediction: public health, personal autonomy, polygenic scores (PGS), evolving clinical practices, and genetic privacy.